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RESOURCES
Helpful links and information for those diagnosed with moyamoya
Prominent Treatment Centers
Stanford University
Boston Children's Hospital
University of California Los Angeles (UCLA)
Cedars-Sinai
Cleveland Clinic
Barrow Neurological Institute
Mayo Clinic
University Hospital Tubingen
University Children's Hospital in Zurich
Beijing_Tiantan_Hospital
Macquarie Neurosurgery Australia
Great Ormond Street Hospital (gosh.nhs.uk)
In the News
Doctors Dismissed Her Symptoms. She Was Having 10-15 ‘Ministrokes’ a Day (today.com), Sarah Jacoby
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Life after brain surgery includes a Grammy nomination for Tokimonsta (nbcnews.com), Emily Tan
‘Unheard of’: Gwendolyn Zeckowski’s road back to pole vaulting after Moyamoya diagnosis (dbknews.com), Ashkan Motamedi
A Stroke Month love story – and so much more | American Heart Association, AHA, Nancy Brown
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From "The Good Doctor," Cash Lee's Moya Moya Story - Bing video
Moyamoya Videos and Files
Moyamoya for Beginners
NEW: Moyamoya Fact Sheet (print and share with friends)
Moyamoya Disease | National Institute of Neurological Disorders and Stroke (nih.gov)
Moyamoya Disease - NORD (National Organization for Rare Disorders) (rarediseases.org)
Moyamoya - RareShare — Rare Genomics Institute
Moyamoya Disease Resources | Children's Hospital of Philadelphia (chop.edu)
American Stroke Association
National Aphasia Association
What Families Should Know About Moyamoya Disease | Global Down Syndrome Foundation
Moyamoya Disease - ClinicalTrials.gov
Stroke in Children | American Stroke Association
Stroke Symptoms | American Stroke Association
World Moyamoya Day - May 6th | Facebook
World Moyamoya Alliance Facebook Page
When to get a second opinion
The power of a healthcare advocate
Moyamoya Study Hall
Moyamoya Disease - StatPearls - NCBI Bookshelf (nih.gov)
Moyamoya and Down Syndrome | Stroke (ahajournals.org)
Moyamoya Syndrome: A Window of Moyamoya Disease - PMC (nih.gov)
People of East Asian descent have more vessels reclog after endovascular treatment | American Heart Association
Prevalence of Stenoocclusive Lesions in the Renal and Abdominal Arteries in Moyamoya Disease (ajronline.org)
Surgical Management of Moyamoya Syndrome - PMC (nih.gov)
Moyamoya syndrome and neurofibromatosis type 1 - PMC (nih.gov)
Association of Thyroid Autoantibodies With Moyamoya-Type Cerebrovascular Disease | Stroke (ahajournals.org)
Patients with moyamoya disease presenting with movement disorder - PubMed (nih.gov)
Pregnancy after direct cerebral bypass for moyamoya disease - PubMed (nih.gov)
Moyamoya Channel
Medical Animation: Progression of Moyamoya | Cincinnati Children's Cerebrovascular Center
Risks of Leaving Moyamoya Untreated - Boston Children's
Moyamoya disease — Diagnostic and treatment advances - Mayo Clinic
Treatment Options for Moyamoya | Anthony Wang, MD | UCLAMDChat - Bing video
Moyamoya Disease Surgery for Children: Pial Synangiosis - YouTube
Stanford Moyamoya Center, Experience in Care - Bing video
Doctors dismissed her symptoms. She was having 10-15 ‘ministrokes’ a day (msn.com)
Coronavirus: Was Moyamoya-Patienten beachten sollten - YouTube
Moyamoya Disease | Dr. Anurag Saxena (Hindi) - YouTube
Lehrvideo zur Moyamoya Angiopathie - YouTube
Doença de Moyamoya - YouTube
Navigating Medical Travel for Specialty Care
Angel Flight | People Flying People in Need
Miracle Flights. A Cure For Distance
Medical Tourism: Travel to Another Country for Medical Care | Travelers' Health | CDC
Where to Stay During Treatment | Stanford Health Care
Patient Resources | Accommodations | Boston Children's Hospital (childrenshospital.org)
Publication 502 (2021), Medical and Dental Expenses | Internal Revenue Service (irs.gov)
GHA WellHotel® (globalhealthcareaccreditation.com)
https://www.verywellhealth.com/network-gap-exception-what-it-is-how-it-works-1738418
NEW: Printable Materials
Moyamoya Fact Sheet
Thank You Cards - print, cut, and send to anyone who has supported you and the moyamoya community!
Moyamoya Reading Room
Emerging from the Smoke: A Collection of Warrior Voices by Orlena Fong
Moyamoya Disease: Diagnosis and Treatment, by John E. Wanebo (Editor), Nadia Khan (Editor), Joseph M. Zabramski (Editor)
Moyamoya Disease: Edition 1 by Jiro Suzuki
Healing the Broken Brain: Leading Experts Answer 100 Questions about Stroke Recovery by Mike Dow, David Dow, Megan Sutton CCC-SLP (Contribution by)
Sven und Fatmas Fantastic Journey by Dr. Nadia Khan
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